Blanchard does not let MS get her down

BY HEATHER MILLER
THE DAILY IBERIAN
Published/Last Modified on Tuesday, February 24, 2009 6:10 AM CST

FRANKLIN — In public, strangers may not notice when Bonnie Blanchard struggles to walk, stand up or even maintain command over her everyday activities.

But for Blanchard, her physical disabilities, coupled with impeding brain lesions that affect cognitive functions, are a constant reminder of an incurable disease.

“It’s a very strange disease,” said Blanchard, who was diagnosed with multiple sclerosis in October 2007.

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“Some days are really, really good and others are just horrible. I can tell when I’m having a bad day because it’s affecting the brain, too. I was so much in control before.”

Blanchard, a stay-at-home mom, school volunteer and Glencoe Charter School board member, is one of more than 4,000 Louisianans who have multiple sclerosis, said MS Society Louisiana Chapter Director of Development Ashley Zeringue. Many people with the disease are not registered with the chapter so the number could be higher, Zeringue said.

The chronic, auto-immune disease causes brain lesions and loss of nerve cells that block impulse transmissions, leading to symptoms including changes in vision, cognitive impairments, weakness, imbalance, extraordinary fatigue, difficulty walking, emotional changes, bladder control problems, numbness and even paralysis and blindness in some cases, Blanchard said.

Though the disease is not terminal, Zeringue said there are numerous, severe physical complications that are often caused by multiple sclerosis.

“The hardest part for them is just kind of coming to terms and trying to realize what it is and what’s going on with their bodies, the fear of the unknown,” said Zeringue.

With no cure yet for the disease, Blanchard said she uses injection therapy to slow the growth of lesions on her brain.

“Research and development of new medications is so important in the fight,” Blanchard said. “We are getting closer to finding a cure.”

As part of an ongoing effort to fund research and offer help to those who suffer from the disease, the Louisiana chapter is participating in a national MS Awareness Week, set for March 2 - 8.

This year’s theme for awareness week is “Move It,” and the only event scheduled in the Teche Area is MS Give Back Night at Chili’s. On March 4, residents can dine at any Chili’s in the state and have 10 percent of sales from the night donated to the Louisiana MS Chapter, Blanchard said.

A flyer must be presented at the restaurant for the donation to be received, Blanchard said. For more information on statewide events or to print out a flyer, contact the Louisiana chapter office in Metairie at 1-800-FIGHT-MS.

“It (the theme) is all about encouraging people to move it to end MS, whether you volunteer, talk, advocate, educate or support,” Blanchard said. “Every action is a demonstration of a commitment to the movement and helps to motivate people who want to and can do something about MS.”

Other events in the state include Walk MS, scheduled for April 4 at Audobon Park in New Orleans, and a walk in Baton Rouge on March 28.

Though there are several support groups throughout the state, the closest groups for Blanchard are in Lafayette and Houma.

Blanchard “loved the outdoors” before being diagnosed, but said she now has to stay in the shade because “MS doesn’t like the heat.” For Blanchard, though, the hardest thing is suffering from steady fatigue and weakness in her legs, she said.

“We have had to readjust things in our lives and it has been OK,” Blanchard said. “My husband and daughter are my biggest supporters and we just work around the symptoms.”

Comments

    Corey wrote on Feb 24, 2009 5:05 PM:

    " Reading this story brings back memories of my high school buddy John Ferris.
    John was diagnosed just a couple years out of high school. He fought the good fight, and went for about 12 years or more before it weakened his body to the point, he couldn't make it. For those of you who didn't know John, he was one of the artists who painted the Mural that was in the alley way on main street. I was disappointed when they wiped the slate clean. Rest in peace John. "

    Ashley wrote on Feb 24, 2009 2:14 PM:

    " My insurance covers the Tysabri which is over $5000 per month. It is medically necessary for you to slow down the process and to enable you to function as a normal person. I would continue to try with your doctors and insurance co. Also you can call the pharm. co. and they do offer some support financially. Don't give up, keep fighting. That is what the insurance is for. "

    Ashley wrote on Feb 24, 2009 2:11 PM:

    " I live in New Iberia and I was diagnosed with MS in Dec. 06'. It was a huge adjustment and I too have learned to stay inside in the summer. The winter is not so great either. I simply push until I can't anymore. I am on Tysabri (which was scary because of the PML virus) The best decison for me. I had become 90% blind in one eye, now I have the normal fatigue and leg pain, but it is much better. Best of luck, God Bless "

    MS in New Iberia wrote on Feb 24, 2009 7:27 AM:

    " I fully understand what you are going through. I was diagnosed with MS in 2003 and I too have the good and bad days. It would help if I was able to afford the medication, $1400 a month is way out of my budget and my insurance won't pay for it because its "not medically necessary". What ever!! I have battled with the insurance for years and I just gave up. Anyway, my prayers are with you and your family! "

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